Our Story

How the Stevie Johnson Children’s Book Series was Borne

Stevie Johnson

From A Snowy Run To A Meeting Opportunity w/ Action:How the Stevie Johnson children’s book series was borne It was a snowy evening in early January 2022. After putting my then-4-year-old daughter to bed, I layered up and set out for an end-of-the-day run through my North Buffalo neighborhood – a (mostly) daily activity that …

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How I Stopped Hiding in the Shadows of Rare Disease (by Jenny Jones)

I hear others within the chronic illness or disability community urging others not to let one’s illness or disability define themselves. When I was younger, I followed this sentiment but as the years have gone by, I no longer relate to this sentiment. Nor do I want to. I inherited a genetic mutation from my …

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